Here is an article I found that is very helpful for caregivers who are struggling with the loved one they are trying so hard to care for.
Archive for the ‘caregiver stress’ Category
When Your Loved One Resists Care in Indianapolis Indiana
Thursday, May 28th, 2009Problems with Poorly Prepared Family Caregivers
Thursday, May 21st, 2009Some caregivers, willingly or unwillingly, fail to provide the level of care necessary to nurture loved ones at home. Here are some of the problems that derive from unprepared or overloaded caregivers. Caregiver Neglect. If the caregiver can spend only minimal time in the morning and evening and will be absent the rest of the day, those receiving care quite often become imprisoned by their environment. They receive little or no social stimulus and may spend day after day just sleeping or watching television. They typically get no exercise other than moving to or from the bathroom and often they suffer from poor nutrition and dehydration due to lack of adequate food and fluid intake. Drinking and eating are deliberately avoided to lessen trips to the bathroom or to avoid soiling a diaper. Malnutrition and dehydration often result in poor mental reasoning or stupor, thus contributing to the daily routine of only sitting, sleeping and enduring the TV. This is not a noble way to finish one’s life. Harried caregivers are doing these people an injustice by keeping them imprisoned in this manner at home. Care recipients should either be in a good adult day services center or in a stimulating environment of an assisted living facility or the family should sacrifice, spend money and bring in full-time aides to provide more adequate care. Self-Neglect Self-neglect is where the care recipient is not interested enough or is incapable of taking care of his or her own needs. This may mean not eating or drinking enough or not attending to personal hygiene. It may mean allowing garbage to accumulate in the home or having pets that are unattended leaving feces and urine in living spaces. There may be a caregiver involved but for whatever reason the caregiver is not stimulating that person receiving care to take care of him or herself or the home environment. And for whatever reason the caregiver is not providing needed help. Self-neglect with or without a caregiver is actually a form of elder abuse and in some states it is required by law that its existence be reported. A caregiver allowing this to happen could be criminally charged. Failure to Bring in Help This is probably the biggest mistake caregivers make. Perhaps, in order to save money to use when the loved one is gone or because they think they are “tough” many caregivers will not ask for help. Or it is common for caregivers to become so involved with their loved one that they isolate themselves from others. This isolation makes them reluctant to contact those who can help. Or a child may try to provide care from a long distance away and find it difficult or impossible to do. Regardless of the cause, failure to ask for help or to hire help can have dire consequences on the welfare of the care recipient and the caregiver. If you are a caregiver please do not allow yourself to fall into the situations described above. Seek help and involve other members of the family if you are overburdened. To learn more about caregiving and find support see Aging Avenues, Indianapolis’ complete Elder Care Guide.
How Can Social Support Ease Caregiver Stress in Indianapolis Indiana?
Friday, May 15th, 2009Here is a great article I found that I wanted to share. The original article can be found at http://www.alzinfo.org/alzheimers-caregiving.asp#3.
National Caregiver Month
Wednesday, November 12th, 2008November is National Caregiver Month which is a time to honor all those, paid or not that care for someone. Having worked in a nursing home I can assure you that the staff works very hard caring for their elderly parents. Because the job involves some not so pleasant tasks I can assure you that if they didn’t like what they were doing they wouldn’t be doing it.
Caregivers that are taking care of the loved one at home I give a special saluate to. You’re doing the job of three people, that’s how many people it takes to care for them in a nursing home. If you’re like most caregivers you’re also working, caring for your own family and trying to keep up with the other things you do. Don’t burn yourself out. It’s ok to ask for help, you can’t do it all. Take a Caregiver Burnout Quiz at http://www.agingavenues.com/topicview.php?id=146&cat=1.
Give any caregiver you know A Hug Today!
Fun with Alzheimer's
Tuesday, October 21st, 2008Fun? Nope…still not. Funny? Yes…but sometimes not even that.
By the time I realized Mom’s recipes, lovingly prepared for us for decades, should be written down because her memory was slowly fading it was too late. For years, at Christmas, my Mom had made each family member’s favorite cookies or candy just for them. A few of the recipes I had called and asked for over the years. But, the sorghum cookie recipe was not one of those.
My niece, Becky, adored Grandma’s sorghum cookies. They were the taste highlight of her holiday. But the recipe was memorized by Mom many years before and either never written down or lost if it was. Becky lamented, “I can’t believe I’ll never taste those cookies again” as tears rolled down her cheeks. She grieved the cookies and her dimming Grandmother, I think.
I then made it my purpose to recreate them. At work, I asked everyone to search their cookbooks for molasses or sorghum cookie recipes. I got dozens. I read each recipe and finally chose the two that I thought showed the most promise, based on my own recollection of what went into them. It had to have ginger as an ingredient and only a little cinnamon.
Two weeks before Christmas, I baked them. I rolled them into BIG walnut-sized balls because one of the things about the cookies was that they were as big as your head! I baked them. I cooled them. I tasted them. “Close but no cigar,” I thought. When Becky arrived, I told her the story of my quest. She tasted them, smiled and thanked me for being so thoughtful. The look on her face told me they were not the same.
The next year, I altered a few things. I rolled them EVEN BIGGER to try to replicate the soft center and outer chewiness. I serve them to Becky again. “These are good,” she said. “But not Grandma’s, right?” I asked. “No,” she said, “not Grandma’s.”
My mom died in January, 2000. She was a saint and had gone to officially be one with God, whom she had walked with every day of her life.
I remember it must have been late July or early August. It was hot and it was early in the morning when the sun is just starting to turn everything gray before dawn. I was asleep dozing actually. Suddenly, there was a very loud crash, as though something had fallen off the wall. I sat bolt upright in bed, and in a clear and loud voice, my Mother said to me, “It’s margarine, Honey, not butter!”
I sat there stunned. I got up and walked the entire house, looking for what had fallen. Nothing was out of place. When I crawled, puzzled, back into bed, Michael aroused. “Are you okay?” he asked. I said, “Yes, but did you just hear my Mom say, “It’s margarine, honey, not butter?” He fully opened his eyes and shook his head. “You must have been dreaming,” he said. “I guess I was,” I replied, knowing full well that wasn’t the case.
“What does that mean?” I thought. “Margarine not butter.” You see, it was late July or early August and I wasn’t thinking about Christmas cookies.
In December, I dutifully got out all the recipes that I fix for my family every year. I pulled out the sorghum cookie recipe and sighed. Should I try again this year, for Becky? As I gazed at the recipe, my eyes fell on the first ingredient: butter. My mother NEVER baked with butter! She ALWAYS baked with Parkay margarine! I understood!
I went to the store. I bought Parkay margarine. I let it soften on the counter until it was limp. I put the Parkay into the KitchenAid mixer along with the sorghum. Unlike butter, the margarine and sorghum didn’t combine. They formed into little brown beads. I added the dry ingredients. I rolled them out into balls as big as your head. I baked them, cooled them and picked one up.
I knew.
When Becky arrived, I offered her a cookie. She smiled at me and dutifully took a bite. Her eyes filled with tears and she stuffed the whole thing into her mouth, chewing with her eyes closed as tears ran down.
“Oh,” she finally said. “I never thought I’d taste that again they’re Grandma’s cookies!”
Take comfort: she never leaves you and she is there in the gray colors of the morning, if you take time to listen.
Thanks, Mom!
Kim Woodward is owner of Senior Helpers of Avon, an in-home care and companionship company. Contact her at kwoodward@seniorhelpers.com or (317) 718-1806.
Fun with Alzheimer's
Tuesday, October 14th, 2008Nope…still not fun. But, funny? Yes!
So, I’ve shared with you that my mom had Alzheimer’s and that she was a former school teacher. One day, at the nursing home where she and my dad lived, she had an idea.
Outside their window was a school. She noticed it and decided she needed a job there.
The nursing home had her cuffed with a sensing device that sounded an alarm if she went out through any door. She quickly figured out that, to silence it, you could wrap your hand around it and it wouldn’t go off.
I had talked to the staff about mom’s condition. I said, “About the only thing I can’t stand the thought of is her wandering out in the cold and freezing to death.” They assured me that they would do their utmost to prevent that.
One November afternoon, I got a call at work. The nurse that took care of mom and dad’s wing told me that she had wandered away and they were looking for her. I said I’d leave right away and come to search for her, but the trip from my downtown office to the nursing home would take 30 minutes or more. Shaking, I left work, got in my car and started driving. About 10 minutes into the trip, I got another call that she had been found, safe and sound.
When I arrived, I found out the following:
Mom had silenced her cuff and headed out the back door toward the school. In a wheelchair, she had scooted across the parking lot, across a baseball diamond, across the school driveway and to the front door. She went inside, found the office and announced, “Hi! I’m Edith Linn and I’ve been a teacher for many years. I’m not working right now and I need a job…here…several days a week.” The school secretary smiled and said, “Well, I think we can use you. Let me just make a call.” She called the adjacent nursing home and said, “I think we have one of your folks over here.”
When I arrived, the nursing staff directed me to the school. I went inside to find the director of the nursing home, my mom, the secretary and the school principal waiting for me. Mom was entertaining everyone with stories of her 44 year teaching career. They were all laughing and enjoying her stories. I said to her, “Mom, we need to get back home. School’s over for today. Let’s go.”
The secretary asked, “She’s such a sweetie! Could I go over and get her a couple of days a week and have her sit with me? It seems that she really misses being in school.”
“Are you serious?” I asked. “You don’t have to do that.”
“I know,” she replied. “But I think she would really enjoy it. We could have her staple things or stuff envelopes for us.”
“Okay,” I said. “I think she’d enjoy it, too.”
So, she got the job! From that point forward, she would get up every day, get dressed, put on her makeup, fix her hair, and get ready for work. It gave her a purpose.
God bless the people who understand that, like children, it takes a whole village!
Kim is the owner of Senior Helpers of Avon, an in-home care and companionship company specializing in matching quality caregivers with clients. Go to www.seniorhelpers.com or email her at kwoodward@seniorhelpers.com for more information.
Fun with Alzheimer's
Wednesday, October 8th, 2008No, it isn’t fun, but some of the things that elderly parents or other loved ones with Alzheimer’s do are funny! My mother is a perfect example of those that, if allowed, can live and die with Alzheimer’s and still keep their dignity.
My sister and I are a lot alike (except that she is MUCH older than I am). We look alike. We sound alike. We like the same sports. We like the same foods. Even my dog, who hates everyone except me, likes her. One area, though, where we were very different was how to cope with our mother’s memory loss.
She spent much time correcting when Mom said or did something outlandish or incorrect. “No, Mom,” she’d say. “You know you live here at the nursing home with Dad and can’t go home.” “No, Mom,” she’d say. “You remember that we talked about your bank account yesterday.” “Mom, that’s not a knife it’s a fork.” It frustrated both of them.
I coped with Mom’s dementia by simply meeting her where she was. I’d walk in and say, “Hi Mom! Where are we today?” “Oh,” she’d say, her eyes lighting up, “we have to watch the turkeys that are in the front forty and make sure they don’t fly over the fence.” “Great!” I’d reply, “I love to watch those turkeys!”
It is terribly tempting to correct, remind, extol, exhort, appeal, correct, and even pander to your loved one with memory loss. You hope for a break through, a return to lucidity, and to have your fully functioning parent back for a few minutes or hours. But, I found that it only served to ruin the time you spent together. I believe I had 3 years longer with Mom than my sister did because I actually enjoyed her company, her stories, her fantasies, her hallucinations and her disorientation and my sister, well, she grieved it.
I’d encourage you to try letting go and allowing them to keep their dignity. Let them be where they are, doing whatever they’re doing, and join in. You might actually learn some facts from the past and you both will be able to simply enjoy each others’ company.
Kim Woodward is owner of Senior Helpers, an in-home care and companionship service that provides elderly clients with the ability to live independently in their own homes and much needed respite for primary caregivers.
Fun with Alzheimer's
Tuesday, September 30th, 2008My mom was an elementary school teacher for 44 years. She had that certain commanding presence that school teachers often have. As her senile dementia progressed, and after a fall that broke her hip, we moved her into a nursing home to be with my dad (who had had a major debilitating stroke and lived there 3 years before mom joined him).
One day, at lunch, my mom and dad along with 20 or so other residents, were eating lunch in the dining room. When the staff left them to take trays to others in their rooms, my mom stood up and clapped her hands.
“Attention attention everyone! The bus to take us all home will be here in 15 minutes! Please finish eating and go to your room to pack your belongings to go home! Thank you!”
Maybe it was her commanding elementary teacher voice or maybe it was just the news that everyone wanted to hear. But all of the residents got up and went to their rooms. When the staff returned after delivering trays, the dining room was empty.
“Where is everyone?” Sue asked Becky. “I don’t know but we’d better go see,” Becky replied.
Sue and Becky went to Mrs. Gradison’s room and found her organizing and packing her belongings. “What are you doing?” they asked. “Well,” Mrs. Gradison replied, “Mrs. Linn just announced that the bus was coming soon to take us all home and I’m packing.”
“NO ” they both replied. “I’m sorry, but Mrs. Linn was confused and there is no bus.” Mrs. Gradison looked crestfallen and went back to the dining room to resume eating. In room after room, Becky and Sue found residents packing and they had to break the bad news and get everyone back on task.
When they arrived in my mom’s room, they asked, “Edith, why did you tell everyone that the bus was coming?” She replied, “Well, I heard the bell ring and that means the buses are lined up and ready to take the kids home!”
“OH ” they both replied. That made sense! She thought she was back at school and the bus was a SCHOOL bus.
That evening, when everyone was seated in the dining room for dinner, and the aides had left to go deliver trays, my mother stood up, clapped her hands once more and said, “Attention “
Guess all the residents that, once again, left to pack had forgotten the earlier incident!
Kim Woodward is owner of Senior Helpers, an in-home care and companionship company in Avon, IN. She left the corporate rat race to pursue her passion: helping seniors and their primary caregivers cope with needs in a loving, home setting. You can contact Kim at the Avon, IN office of Senior Helpers at (317) 718-1806.

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